Dementia Pathways Tool
The Dementia Pathways Tool is a publicly accessible resource providing primary health care professionals and the community with a web-based repository containing information, tools and resources for the assessment, referral and management of people with dementia.
Dementia is one of the fastest growing diseases in Australia, with prevalence rates expected to rise steadily over coming years 1. At the forefront of dementia care is the primary health care workforce (general practitioners; practice nurses) who are providing essential support across the disease continuum, from early diagnosis to ongoing management. However, this disease is complex and often places significant demand on primary health care workers.
An initiative in the Grampians region sougth to address some of these challenges with the development of the intuitive, online Dementia Pathways Tool. Launched in 2013, the Dementia Pathways Tool offers a comprehensive yet intuitive web-based repository of dementia-related information, tools, service directories and resources which is publically available. This enables community access to information about dementia that may be of relevance, including family and carer support, financial and legal issues, driving capabilities and powers of attorney.
The Tool was originally guided in its development by the Dementia Pathways Working group comprising representatives from the Department of Health and Human Services (Grampians) and Grampians Medicare Local. The content for the Dementia Pathways Tool was undertaken by Ms Carolyn Gargiulo, Grampians Region Department of Health and Human Services, as the lead organisation, in collaboration with Associate Professor Mark Yates consultant physician in geriatric medicine, from the Cognitive Dementia and Memory Service (CDAMS), Ballarat Health Services, and Deakin University.
In 2015, CeRDI collaborated with South East Melbourne Medicare Local to prepare a version of the Dementia Pathways Tool for its region. Advisory groups from the South Eastern Melbourne Medicare Local, including the Aged Care Advisory Group, contributed to the development of the South Eastern Melbourne Dementia Pathways Tool.
The Dementia Pathways Tool has since undergone a number of modifications, ensuring its content remains current and relevant, and new information is available to users of the tool.
Key features of the Dementia Pathways Tool include a split-screen with toggle menu for navigation. Access to relevant information occurs via eight key menu options:
- Awareness and recognition of significant symptoms;
- GP assessment and management;
- Practice nurse – assessment and care planning;
- Medicolegal issues;
- Ongoing management and care;
- Palliative and end-of-life care;
- Family support.
Menu items are accessed through a pathways ‘tree’ with branches to secondary menu items. Navigating the site is facilitated by the pathway with menu items providing a logical guide.
The Tool includes a comprehensive keyword search with expandable information layers offering a greater number of searchable options to source and retrieve content. The website is complemented by an interactive pathways map; a support tool and service directory with referral pathways.
Other features of the website include links to dementia-related resources and websites, access to dementia assessment tools for GPs and practice nurses, and links to the MBS items, applicable to the dementia diagnostic pathways.
Dementia Pathways Tool - 16 December 2020
Updates to Dementia Pathways Tool are currently underway, with CeRDI working closely with Associate Professor Mark Yates from Ballarat Health Services... Continue reading...
Dementia Pathways Tool: planned updates - Summer 2017
Over the coming months, CeRDI will work closely with Deakin University and Ballarat Health Services’ Associate Professor Mark Yates to implement important upgrades to the content of the Dementia Pathways Tool. Continue reading...
A second online Dementia Pathways Tool has just been launched in South Eastern Melbourne. Federation University collaborated with South Eastern Melbourne Medicare Local to prepare a dementia pathways tool for practi... Continue reading...
Launch: Dementia Pathways Tool - 21 August 2013
The Online dementia pathways tool was launched at Ballarat Health Services on 13 August.... Continue reading...
Research was conducted alongside the implementation and delivery of the Tool, exploring both the process for developing an online tool for dementia care, and to examine the awareness and adoption of the Tool by primary health practitioners (GPs and nurses). The findings of the research are documented in the following journal publications.
Ollerenshaw, A. (2015). Online pathways for dementia care. Australian Family Physician, 44 (7), 510-513. Australian Family Physician | Online pathways for dementia care
Ollerenshaw, A., Wong Shee, A., Yates, M. Towards good dementia care: An Online Dementia Pathways Tool for rural and regional primary health practitioners. The Australian Journal of Rural Health, 26(2), 112-118. doi: 10.1111/ajr.12376
Project funder and lead agency working in collaboration with Medicare Local Grampians and Associate Professor Mark Yates to develop the pathways tool.
Current project partner, hosting the Dementia Pathways Tool in Western Victoria.
Grampians Medicare Local
Project partner contributing broadly to the development of the pathways tool for the Grampians region.
Associate Prof Mark Yates, Deakin University and Ballarat Health Services
Project collaborator, providing support and advice pertaining to the development, and subsequent promotion of the Dementia Pathways Tool, and facilitating access to content and publications.
Current project partner, hosting the Dementia Pathways Tool for South Eastern Melbourne.